Disneyland and Genetic Testing Results

Hello-

We had a lovely vacation at Disneyland. Stacey had so much fun. She looooved the tea cups and dumbo and the carousel the most. When we went to Disneyland the first day she met one of the cast members and then he was talking to other cast members and then soon everyone in Fantasayland had fallen in love with Stacey. She was treated like a princess!! We went on the storybook canal and when we got off the ride. There was a "glass" (actually plastic) slipper that Cinderella left in Stacey's wheelchair and a note left from Cinderella. And then we went to the Princess Fantasy Faire. Oh boy we waited in line for an hour and then they let Stacey just have the run of the place while she met with all of the princess' they walked with her and talked with her and took a group picture which is rare. We definetly plan on going back to Disneyland sooner than later. Now on to genetics

After waiting 3 looong weeks. The results are in and Stacey does not have a Mitochondrial Disease or and genetic condition. So the next plan is to do a specialized chromosone test that first needs approval from her insurance company. So once it's approved we can go get the labs drawn and then the results will take 4 weeks to get back. So that will be quite a long wait. I will let you all know what become of it. I'm glad that she doesn't have a mitochondrial disease but on the other hand we still do not have any answers as to what Stacey might have. So I guess that's all for now. If you have any questions please feel free to ask.

Stacey has also been diagnosed with moderate-severe asthma. We are starting her on a couple of asthma medications that will go into her nebulizer to help her breathing.

Thank you for all of your continued prayers

Love and God Bless,
Cherice, Stacey and Sunny