Wow I looked at the sign-on page and it said I hadn't blogged since April 1st. That's a little sad that I haven't been on here. I have been supper busy though. So here we go.
Stacey and I were out in the garden pulling weeds one Sunday afternoon and then she woke up Monday morning sick as a dog. So started her on medication and then 2 1/2 weeks later still not better and was developing fevers and her face was sore. Usually her entire body aches but her face being sore was a new one for me. So That day we had an appointment with another new doctor an immunologist and she didn't know what was wrong so she had the ENT come in and look at Stacey and the verdict is that her salivary glands are infected. I bout fell off my seat how does that happen? And WHY? some day's it's a little irritating that I have more questions than answers. So she got another antibiotic. UGH. And then the immunologist who specializes in allergies came back in and tested Stacey for some environmental things. Eucalyptus, Ragweed, Palm, Sage, Mulberry, Mold, Dust, Dogs and Horses. And she's allergic to all but dogs, horses and mold. I chuckled a little at myself thinking that Stacey is allergic to just about darn everything that grows indigenous to our area, especially eucalyptus and palm. They didn't test for food allergies because we were more concerned about environmental ones right now. And then we discussed the possibility that Stacey might have an immunodeficiency disease. So she was only going to run a few blood tests and I told her well if your going to run 1 you might as well run as many as you can so that we can rule things out ASAP. They are testing her for Cystic Fibrosis, and a condition where the body is unable to fight off certain strands of bacteria and viruses, and checking her blood at a very in-depth level. We will have some of the results the next day but most of them get sent to the MAYO Clinic and won't be back for weeks. I'm really interested to see what the tests show if she does have something wrong it sure would explain alot. She is also getting a CT scan done of her head to take a look at all of her sinus cavities and look at her tonsils and adenoids to see if there is anything they can do that way to help her from getting sick all the time. She is also getting a sleep study done to see if there is any way to help her while she is sleeping...for example to look at her breathing to see if she might need oxygen or a C-pap machine or an apnea monitor. Or positioned a certain way to help her breathe easier. She has been out of school for almost 2 weeks and she will be going back tomorrow hopefully for a full day. Tuesday she has doctors appointments and same with Wednesday.
We have a possible solution for getting her current and future wheelchairs into our van. We should qualify for a grant to get a lift that will only pick up the wheelchair itself not with her in it and put it in the van. Which that alone would be an answer to prayer and a blessing to us. We should know in a couple of weeks weather we will be able to get the grant. If not I haven't given up hope I still have other avenues that I can explore if need be :-)
Sunny is doing great and bonds more and more with Stacey. He has been a huge help in comforting her when we've been at doctors offices. When she had her allergy testing done he was snuggling her and she was feeding him treats and then he would kiss her hand. It was precious and priceless. We really love having Sunny in our house with us. he too is a blessing.
I think that is all for now. If you have questions about anything please ask me. I would rather answer questions than have something assumed. Thank you for keeping up with us and I will let you know ASAP when I hear something from the blood tests.
Love and God Bless,
Cherice, Stacey and Sunny :-)
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